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	<title>Comments for Bur Bur &amp; Friends Blog</title>
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	<link>http://burburandfriendsblog.com</link>
	<description>Growing Kids Through Diverse Learning Experiences ® for parents, educators and caregivers. Discuss self-esteem in children, literacy and creating healthy families</description>
	<lastBuildDate>Sat, 28 Jan 2012 18:34:28 -0700</lastBuildDate>
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		<title>Comment on Having a Great Marriage – and a Special Needs Child by Kakie</title>
		<link>http://burburandfriendsblog.com/2012/01/26/having-a-great-marriage-%e2%80%93-and-a-special-needs-child/comment-page-1/#comment-2114</link>
		<dc:creator>Kakie</dc:creator>
		<pubDate>Sat, 28 Jan 2012 18:34:28 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=6071#comment-2114</guid>
		<description>&lt;p&gt;Hi Diane, thanks for visiting and reading our post. I agree with you. No one ever promised this life would always be smooth sailing, but everything happens for a reason. ;)&lt;/p&gt;</description>
		<content:encoded><![CDATA[<p>Hi Diane, thanks for visiting and reading our post. I agree with you. No one ever promised this life would always be smooth sailing, but everything happens for a reason. <img src='http://burburandfriendsblog.com/wp-includes/images/smilies/icon_wink.gif' alt=';)' class='wp-smiley' /> </p>
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		<title>Comment on Having a Great Marriage – and a Special Needs Child by Diane - It's All Good Until You Burn Dinner</title>
		<link>http://burburandfriendsblog.com/2012/01/26/having-a-great-marriage-%e2%80%93-and-a-special-needs-child/comment-page-1/#comment-2113</link>
		<dc:creator>Diane - It's All Good Until You Burn Dinner</dc:creator>
		<pubDate>Fri, 27 Jan 2012 14:26:52 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=6071#comment-2113</guid>
		<description>I&#039;m sure there are challenges ahead that arent even imagined. I can only believe with determination and love, it can become a positive growth experience.</description>
		<content:encoded><![CDATA[<p>I&#039;m sure there are challenges ahead that arent even imagined. I can only believe with determination and love, it can become a positive growth experience.</p>
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		<title>Comment on October is National Disability Awareness Month by Kakie</title>
		<link>http://burburandfriendsblog.com/2011/10/26/october-is-national-disability-awareness-month/comment-page-1/#comment-2067</link>
		<dc:creator>Kakie</dc:creator>
		<pubDate>Sun, 30 Oct 2011 16:54:18 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=5767#comment-2067</guid>
		<description>Hi Catherine, thank you for visiting our blog and for sharing your perspective.  

I agree many people just do not know what to say or how to respond. A simple smile and a hello sometimes is enough. Validation that says: &quot;&lt;strong&gt;I see you&lt;/strong&gt;&lt;em&gt;&quot; is important to all of us. I have worked and had friendships with others who had visible and &quot;Invisible&#039; disabilities. Those with disabilities that could not be seen struggled to find the right way to let people know they process information differently. Hopefully Disability Awareness Month presents opportunities to share this kind of information with others. Thanks for your comments!

P.S. 5 of our children&#039;s characters in the series have disabilities. :)</description>
		<content:encoded><![CDATA[<p>Hi Catherine, thank you for visiting our blog and for sharing your perspective.  </p>
<p>I agree many people just do not know what to say or how to respond. A simple smile and a hello sometimes is enough. Validation that says: &#8220;<strong>I see you</strong><em>&#8221; is important to all of us. I have worked and had friendships with others who had visible and &#8220;Invisible&#8217; disabilities. Those with disabilities that could not be seen struggled to find the right way to let people know they process information differently. Hopefully Disability Awareness Month presents opportunities to share this kind of information with others. Thanks for your comments!</p>
<p>P.S. 5 of our children&#8217;s characters in the series have disabilities. <img src='http://burburandfriendsblog.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </em></p>
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		<title>Comment on October is National Disability Awareness Month by Catherine W</title>
		<link>http://burburandfriendsblog.com/2011/10/26/october-is-national-disability-awareness-month/comment-page-1/#comment-2065</link>
		<dc:creator>Catherine W</dc:creator>
		<pubDate>Sat, 29 Oct 2011 15:35:15 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=5767#comment-2065</guid>
		<description>As a person with a disability, I would like people to be able to see past my disability to the person I am and the experiences that I have had. I think people are afraid to say the wrong thing and as a result, may avoid people who are disabled or judge them unfairly. I try to engage people in discussions about what we have in common, so they see me, not my disability.

Just a few comments from my perspective! :D

I really don&#039;t like to be called a disabled person. That puts &quot;disabled&quot; first. I think of myself as a person with a disability - person first, disability 2nd.

I think, instead of automatically assuming a person with a disability needs help (if they are able to communicate), ask them if and how you can help them. It can start a conversation, which helps build a connection and understanding. 

I know in most situations, I have already figured out what my challenges will be, and know what to ask for! It&#039;s really nice to have someone ask how they can help. It saves me the embarrassment of having to ask or struggle. I really hate calling attention to my disablity. 

Another tip for kids - I think kids should not tell friends with disabilities to &quot;hurry up.&quot;
</description>
		<content:encoded><![CDATA[<p>As a person with a disability, I would like people to be able to see past my disability to the person I am and the experiences that I have had. I think people are afraid to say the wrong thing and as a result, may avoid people who are disabled or judge them unfairly. I try to engage people in discussions about what we have in common, so they see me, not my disability.</p>
<p>Just a few comments from my perspective! <img src='http://burburandfriendsblog.com/wp-includes/images/smilies/icon_biggrin.gif' alt=':D' class='wp-smiley' /> </p>
<p>I really don&#8217;t like to be called a disabled person. That puts &#8220;disabled&#8221; first. I think of myself as a person with a disability &#8211; person first, disability 2nd.</p>
<p>I think, instead of automatically assuming a person with a disability needs help (if they are able to communicate), ask them if and how you can help them. It can start a conversation, which helps build a connection and understanding. </p>
<p>I know in most situations, I have already figured out what my challenges will be, and know what to ask for! It&#8217;s really nice to have someone ask how they can help. It saves me the embarrassment of having to ask or struggle. I really hate calling attention to my disablity. </p>
<p>Another tip for kids &#8211; I think kids should not tell friends with disabilities to &#8220;hurry up.&#8221;</p>
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		<title>Comment on Is Your Child Being Bullied? by Kakie</title>
		<link>http://burburandfriendsblog.com/2011/10/05/is-your-child-being-bullied/comment-page-1/#comment-2061</link>
		<dc:creator>Kakie</dc:creator>
		<pubDate>Thu, 20 Oct 2011 20:56:40 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=5625#comment-2061</guid>
		<description>Hi Trisha, thank you for the great information and joining us in conversation! Please keep coming back! We look forward to staying connected!</description>
		<content:encoded><![CDATA[<p>Hi Trisha, thank you for the great information and joining us in conversation! Please keep coming back! We look forward to staying connected!</p>
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		<title>Comment on Visioning Bright Future for Kids: Counteracting a Negative Trend in Youth Literature by Kakie</title>
		<link>http://burburandfriendsblog.com/2011/09/28/5604/comment-page-1/#comment-2060</link>
		<dc:creator>Kakie</dc:creator>
		<pubDate>Thu, 20 Oct 2011 20:55:14 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=5604#comment-2060</guid>
		<description>Hi Karen, thank you for the great information and for joining us in conversation! Please keep coming back and don&#039;t keep us a secret!</description>
		<content:encoded><![CDATA[<p>Hi Karen, thank you for the great information and for joining us in conversation! Please keep coming back and don&#8217;t keep us a secret!</p>
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		<title>Comment on Is Your Child Being Bullied? by Trisha Smith</title>
		<link>http://burburandfriendsblog.com/2011/10/05/is-your-child-being-bullied/comment-page-1/#comment-2059</link>
		<dc:creator>Trisha Smith</dc:creator>
		<pubDate>Wed, 19 Oct 2011 10:27:11 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=5625#comment-2059</guid>
		<description>These are great tips! Thank you for posting this. The idea of my children being harmed, taunted or bullied is not something anyone wants to consider. I found an article by anationofmoms about a service that can protect your family via your cell phone. And, at the bottom there is an opportunity to enter a drawing for 6 months of that service just by liking them on Facebook. You might find it interesting: http://anationofmoms.com/2011/08/protect-your-family-giveaway.html
	 </description>
		<content:encoded><![CDATA[<p>These are great tips! Thank you for posting this. The idea of my children being harmed, taunted or bullied is not something anyone wants to consider. I found an article by anationofmoms about a service that can protect your family via your cell phone. And, at the bottom there is an opportunity to enter a drawing for 6 months of that service just by liking them on Facebook. You might find it interesting: <a href="http://anationofmoms.com/2011/08/protect-your-family-giveaway.html" rel="nofollow">http://anationofmoms.com/2011/08/protect-your-family-giveaway.html</a></p>
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		<title>Comment on Visioning Bright Future for Kids: Counteracting a Negative Trend in Youth Literature by Karen E. Dabney</title>
		<link>http://burburandfriendsblog.com/2011/09/28/5604/comment-page-1/#comment-2055</link>
		<dc:creator>Karen E. Dabney</dc:creator>
		<pubDate>Sat, 01 Oct 2011 00:15:51 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=5604#comment-2055</guid>
		<description>You make great points. I&#039;ve written a novel for youth that deals with a lot of tough subjects but is uplifting and inspiring. It&#039;s also an attention grabber because it&#039;s told by a boy that kids of all ethnicities can identify with I believe telling the youth the truth when possible but not in a maudlin way.</description>
		<content:encoded><![CDATA[<p>You make great points. I&#8217;ve written a novel for youth that deals with a lot of tough subjects but is uplifting and inspiring. It&#8217;s also an attention grabber because it&#8217;s told by a boy that kids of all ethnicities can identify with I believe telling the youth the truth when possible but not in a maudlin way.</p>
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		<title>Comment on Preston and Our Unexpected Gift of Down Syndrome by admin</title>
		<link>http://burburandfriendsblog.com/2011/08/03/preston/comment-page-1/#comment-2047</link>
		<dc:creator>admin</dc:creator>
		<pubDate>Sun, 04 Sep 2011 23:01:13 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=5378#comment-2047</guid>
		<description>Gillian, Thanks for joining the conversation. Please don&#039;t keep us a secret.  Good luck to you!</description>
		<content:encoded><![CDATA[<p>Gillian, Thanks for joining the conversation. Please don&#8217;t keep us a secret.  Good luck to you!</p>
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		<title>Comment on An Undiscovered Path: A Child with Neurofibromatosis Type 1 (NF1) by JoAnne</title>
		<link>http://burburandfriendsblog.com/2009/05/15/an-undiscovered-path-a-child-with-neurofibromatosis-type-1/comment-page-1/#comment-2046</link>
		<dc:creator>JoAnne</dc:creator>
		<pubDate>Sun, 04 Sep 2011 22:51:31 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=844#comment-2046</guid>
		<description>Hi Celia, While we are not doctors, a second option never hurts.  Are you taking your daughter to someone that specializes in NF? Good luck!</description>
		<content:encoded><![CDATA[<p>Hi Celia, While we are not doctors, a second option never hurts.  Are you taking your daughter to someone that specializes in NF? Good luck!</p>
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		<title>Comment on An Undiscovered Path: A Child with Neurofibromatosis Type 1 (NF1) by JoAnne</title>
		<link>http://burburandfriendsblog.com/2009/05/15/an-undiscovered-path-a-child-with-neurofibromatosis-type-1/comment-page-1/#comment-2045</link>
		<dc:creator>JoAnne</dc:creator>
		<pubDate>Sun, 04 Sep 2011 22:41:30 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=844#comment-2045</guid>
		<description>Hi Matt from Australia! Thank you for sharing your NF story and encouragement, awareness if the key.</description>
		<content:encoded><![CDATA[<p>Hi Matt from Australia! Thank you for sharing your NF story and encouragement, awareness if the key.</p>
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		<title>Comment on Reading Enrichment Tips for Families From Bur Bur and Friends by Kakie</title>
		<link>http://burburandfriendsblog.com/2011/08/15/reading-enrichment-tips/comment-page-1/#comment-2043</link>
		<dc:creator>Kakie</dc:creator>
		<pubDate>Thu, 18 Aug 2011 02:23:47 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=5407#comment-2043</guid>
		<description>Thanks for the tip Joe! Great thoughts!</description>
		<content:encoded><![CDATA[<p>Thanks for the tip Joe! Great thoughts!</p>
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		<title>Comment on Reading Enrichment Tips for Families From Bur Bur and Friends by K5 Learning</title>
		<link>http://burburandfriendsblog.com/2011/08/15/reading-enrichment-tips/comment-page-1/#comment-2042</link>
		<dc:creator>K5 Learning</dc:creator>
		<pubDate>Wed, 17 Aug 2011 06:49:56 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=5407#comment-2042</guid>
		<description>Its all good advice. here is another: After your child has moved of your lap and can read on their own, keep lots of books available and the television and video games off. Its tough for the printed page to compete with video for children&#039;s attention &amp; Sometimes a little boredom is helpful in helping them discover the joys of good books.
www.k5learning.com</description>
		<content:encoded><![CDATA[<p>Its all good advice. here is another: After your child has moved of your lap and can read on their own, keep lots of books available and the television and video games off. Its tough for the printed page to compete with video for children&#8217;s attention &#038; Sometimes a little boredom is helpful in helping them discover the joys of good books.<br />
<a href="http://www.k5learning.com" rel="nofollow">http://www.k5learning.com</a></p>
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		<title>Comment on Preston and Our Unexpected Gift of Down Syndrome by Gillian</title>
		<link>http://burburandfriendsblog.com/2011/08/03/preston/comment-page-1/#comment-2039</link>
		<dc:creator>Gillian</dc:creator>
		<pubDate>Sat, 13 Aug 2011 10:00:41 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=5378#comment-2039</guid>
		<description>This is such a sweet, resounding post! And it&#039;s true... a mother always knows.
Thanks for sharing her story. It put things into perspective for me, as I am currently undergoing something similar. So you know, I&#039;m newly following via GFC from the SUNDAE hop!    Gillian from BabyTalkWithoutthebabble.com </description>
		<content:encoded><![CDATA[<p>This is such a sweet, resounding post! And it&#8217;s true&#8230; a mother always knows.<br />
Thanks for sharing her story. It put things into perspective for me, as I am currently undergoing something similar. So you know, I&#8217;m newly following via GFC from the SUNDAE hop!    Gillian from BabyTalkWithoutthebabble.com</p>
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		<title>Comment on An Undiscovered Path: A Child with Neurofibromatosis Type 1 (NF1) by celia</title>
		<link>http://burburandfriendsblog.com/2009/05/15/an-undiscovered-path-a-child-with-neurofibromatosis-type-1/comment-page-1/#comment-2023</link>
		<dc:creator>celia</dc:creator>
		<pubDate>Thu, 23 Jun 2011 02:14:15 +0000</pubDate>
		<guid isPermaLink="false">http://burburandfriendsblog.com/?p=844#comment-2023</guid>
		<description>Hi.; My six year old daughter has 4 cafe au latte spots on her abdomen and one neurofibroma on her left shoulder.&amp; She calls it her third nipple! Every once in a while, usually in hot weather, it swells and itches. I rub cortisone cream on it and it goes away. Her pediatrician doesnt seem concerned. Should I be?</description>
		<content:encoded><![CDATA[<p>Hi.; My six year old daughter has 4 cafe au latte spots on her abdomen and one neurofibroma on her left shoulder.&#038; She calls it her third nipple! Every once in a while, usually in hot weather, it swells and itches. I rub cortisone cream on it and it goes away. Her pediatrician doesnt seem concerned. Should I be?</p>
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